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obstetric cholestasis Center Greece

For people affected by obstetric cholestasis

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  • OC research: how you can take part

    Research into OC in the UK is relatively new. Professor Catherine Williamson's Maternal & Fetal Disease Group began to investigate the condition in 1998 and is now one of the largest research groups focusing on cholestasis in Europe. OC Support has been collaborating with this group since 1998.

    As a result, many women and their families have donated blood samples and provided data for studies into the condition. Their generosity has enabled the research to develop rapidly, and many scientific papers have been published. The group is also indebted to all the clinicians and midwives around the country who have helped to collect these samples and provide data.

    To sustain this momentum more samples are needed and this is where you could help (whether you are pregnant or not). You can do as much or as little as you want, which could include:

    • completing questionnaires
    • donating blood samples and post-delivery placental samples (if you are pregnant)
    • taking part in specific projects

    Full ethical permission has been given for this research to take place.

    You need to:

    • be over 18
    • currently have OC or to have had a diagnosis of OC in the past.

    We also need a control group of women who have been pregnant but who have not had any complications in their pregnancy. This helps the researchers to make sure that any new discoveries, such as a genetic variant, are specific to women with OC rather than all pregnant women. If you have friends (not relatives) who might also be interested in helping us they can also take part.

    Your samples will make a difference, helping researchers add to existing knowledge of the condition; knowledge that has only been obtained because of the generosity of previous OC and non-OC families.

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    Take part in research

    Help our scientists better understand the causes of OC and find ways to treat the condition. You don't have to be pregnant to take part!

    • provide information and support to people affected by OC
    • raise awareness of OC
    • promote research into OC
    • About obstetric cholestasis (OC)

      13 – Can I take HRT?

      There has been no research regarding HRT and OC. As with hormonal contraception, it's a question of trying it to see what happens. A starting point would be to see your GP or practice nurse to discuss this with him or her. It would also be a good idea to have your liver function checked before you start to take HRT.

      In March 2012 it was officially registered as a charity whose aims are to:

  • Speak to someone who's had OC and can give you information about the condition.

  • 23 July: Kerry Evans has donated £100 to OC Support – thank you!
  • 19 July: Steven and Gina Binder have donated £250 to OC Support – thank you!
  • 18 July: MAMA Academy has a page of information about OC
  • 15 July: Helpline hours extended for a trial period
  • 15 July: The latest new arrival: Toby Eaton
  • 10 July: We've just reached 200 followers on Twitter – join in and spread the word!
  • 8 July: A new arrival: Toby
  • 29 June: Two new arrivals from the USA: Kenley and Adley Marks
  • 29 June: Alice Tuson's soft play and sing-song event in St Albans raised £198.55 for OC Support

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